Active PROMIS Studies
The following NIH–funded studies are taking place at 12 sites across the country.
All are implementing PROMIS® tools in efforts to expand the body
of knowledge about and further validate PROMIS®.
Studies with Adults
Patient Reported Outcomes in routine clinical
care of patients infected with HIV
Principal Investigators: Heidi Crane, Paul Crane, Donald Patrick (U. of Washington)
Improving Assessment of Physical Function and
Drug Safety in Health and Disease
Principal Investigator: James Fries (Stanford)
Validating and Extending the PROMIS Sexual Function
Measure for Clinical Research
Principal Investigator: Kevin Weinfurt (Duke)
Development and Initial Validation of PROMIS
GI Distress Scale
Principal Investigators: Dinesh Khanna, Brennan Spiegel (UCLA)
Validation and domain development in mental
health and sleep–wake function.
Principal Investigator: Paul Pilkonis (Pittsburgh)
Development and Validation of a Self–Efficacy
Item Bank
Principal Investigator: Lisa Shulman (U. Maryland – Baltimore)
Ecological Validity of PROMIS Instruments
Principal Investigators: Joan Broderick, Arthur Stone (Stony Brook)
Validation of PROMIS in Diverse Cancer Populations
Principal Investigators: Arnold Potosky, Carol Moinpour (Georgetown University)
Studies with Children
PROMIS Pediatrics: Longitudinal Validation
and Linking Pediatric and Adult Item Banks
Principal Investigator: Darren DeWalt (U. of North Carolina)
Pediatric PROMIS: Advancing the Measurement
and Conceptualization of Child Health
Principal Investigator: Christopher Forrest (Children’s Hospital of Philadelphia)
PROS (Patient Reported Outcomes) for Children and
Young Adults with Disabilities
Principal Investigators: Stephen Haley, David Tulsky (Boston U.)
Enhancing PROMIS in Pediatric
Pain, Rheumatology, and Rehabilitation Research
Principal Investigator: Esi Morgan DeWitt (Children’s Hospital, Cincinnati)
Studies with Children and Adults
UW Center on Outcomes Research in Rehabilitation (UWCORR)
Principal Investigator: Dagmar Amtmann (U. of Washington)