Instrument Details

Recall Period

The Anxiety, Anger, Depression, Fatigue, Pain Behavior, Pain Interference, Satisfaction with Discretionary Social Activities, and Satisfaction with Social Roles item banks utilize a 7–day recall period (items include the phrase "the past 7 days"). Physical function items emphasize current capabilities and therefore do not employ a recall period. Those items have stems that begin with phrases such as "Does your health now limit you" or "Are you able to." Some global health items use a 7–day recall period, while others do not employ a recall period and emphasize current status "in general."

Response Options

The term "response options" refers to the set of answers a respondent can choose from when responding to a question or statement. Virtually all PROMIS® items employ five response options (e.g., 1=Not at all, 2=A little bit, 3=Somewhat, 4=Quite a bit, 5=Very much). Pain Behavior uses six response options to allow for respondents to endorse "no pain." The 10 PROMIS® Global Health items each have 5 response choices, with the exception of the common 11–point pain intensity item ("How would you rate your pain on average" with 0=No pain and 10=Worst imaginable pain).

To the extent possible, the wording of response categories was kept consistent within banks, and a limited degree of variation in response options was used across banks. This was done to ease patient burden. An effort was made for items within a PROMIS® domain to utilize the same or a small number of response options. Some flexibility in response choices within banks was considered important, however, to capture the range of patient experience in a domain (e.g., intensity, frequency, duration). Therefore, for example, most banks employed a common set of response options for intensity (i.e., "Not at all" to "Very much") and frequency (i.e., "Never" to "Always"). The final response categories were pre–tested with cognitive interviews to confirm patient comprehension, prior to field testing for item calibration. When possible, to ease responder burden, initial short forms developed from PROMIS® item banks comprise items with a common set of response options. Exceptions are the 10 Global Health items which utilize 5 unique response options and the Physical Function short form which uses 2 response options.

Population

As noted in the Calibration Studies Testing section, scale setting was performed using a sample reflecting year 2000 census demographics data. Many participants with chronic disease (e.g., cancer, heart disease, arthritis, COPD, spinal cord injury, psychiatric conditions) were included.