PROMIS Network Center
NIH PROMIS Network Center
PI Name, Title and Contact Information:
San Keller, Principal Research Scientist,
Health Services Research Division, American Institutes for Research (AIR). Bio
Other Key Personnel:
Susan Heil, PhD, Co-Investigator
Steve Garfinkel, PhD, Co-Investigator
Julie Jacobson Vann, PhD, MS, RN, Co-Investigator.
Michael Riggs, PhD, Co-Investigator.
The PROMIS Network Center (PNC) facilitates the seamless functioning of the entire
PROMIS Network; provides scientific expertise to address further research and development
of PROMIS item banks, software, and user support; and establishes public/private
partnerships that will sustain PROMIS after 2013. To accomplish these objectives
the PNC focuses on three, corresponding, functional cores: Managerial, Scientific,
The goals of the PNC are specific to each core. The PNC’s Managerial
Core function is driven by the primary objective of facilitating the Network’s ability
to implement and realize the SPRA and support the various Network entities in accomplishing
their pursuits related to this ultimate end. It is through fulfillment of the SPRA
that the PNC will ultimately carry out the plans and vision of the Steering Committee
for advancing PROMIS. Aims of the Managerial Core define its provision of effective
Network support. The goal of the PNC Scientific Core is to serve as a scientific
resource for both the PNC and the PROMIS Network as a whole. The PNC Sustainability
Core has a critical and uniquely important function within the PROMIS Network and
for the entire PROMIS initiative: the role of creating viability for the PROMIS
enterprise after the current funding structure ends.
PNC Managerial Core
AIM 1: Effect Transition to PROMIS II: Transition the PROMIS Network
to promote a "learning collaborative" among former, continuing, and new
AIM 2: Develop SPRA: Direct the development and periodic updating
of the SPRA as a dynamic guiding document for all Network efforts and the source
for the "logic model" underlying the PROMIS Network evaluation activities.
AIM 3: Support PROMIS II Network Operations: Coordinate internal
functions to maximize efficiency and effectiveness in fulfilling the SPRA.
AIM 4: Evaluate Network: Evaluate progress of the Network’s fulfillment
of the SPRA, and recommend changes where needed.
AIM 5: Manage Meetings: Utilize state-of-the-art communication
and conference technology to enhance information sharing and to foster collegial
relations among the grantee sites, PNC, PSC, PTC, PNSC, and extra-Network stakeholders
to advance the science of patient-centered measurement.
PNC Scientific Core
AIM 6: Design/Contribute to the Research Agenda: Provide expertise
in measurement development and clinical study design to create and periodically
update the Research Agenda portion of the draft SPRA and contribute state-of-the
science research to the development of PROs.
AIM 7: Clinical Data monitoring and Analysis: Participate in Network-wide
data monitoring and provide Network-wide leadership design and analysis of data
from clinical studies.
AIM 8: Design Scientific Protocols: Design and evaluate a minimal
set of standard procedures for the development and testing of assessment systems
produced for PROMIS, create and test guidelines for the appropriate application
of PROs and PRO data, and establish standard procedures for implementing and managing
collaborations between extra-Network entities and the PROMIS Network.
PNC Sustainability Core
AIM 9: Develop Public/Private Partnerships: Apply experience in
forming productive partnerships between branches of Government and industry to achieve
a business plan to support PROMIS product maintenance, dissemination, and further
AIM 10: Public Dissemination/Communication: Develop dissemination
and communication plans that are effective in reaching and engaging intended audiences
For questions concerning the PNC’s role in the PROMIS network, please contact San
Keller by email at email@example.com. For more
information about the PROMIS network, go to http://www.nihpromis.org.