PROMIS® Overview
PROMIS® stands for Patient Reported Outcomes Measurement Information
System, which is a system of highly reliable, precise measures of patient–reported
health status for physical, mental, and social well–being. PROMIS®
tools measure what patients are able to do and how they feel by asking questions.
PROMIS’ measures can be used as primary or secondary endpoints in clinical studies
of the effectiveness of treatment, and PROMIS® tools can be used
across a wide variety of chronic diseases and conditions and in the general population.
The data collected in PROMIS® provides clinicians and researchers
with important patient–reported information about the effect of therapy that
cannot be found in traditional clinical measures. When used with traditional clinical
measures of health, PROMIS® tools allow clinicians to better understand
how various treatments might affect what patients are able to do and the symptoms
they experience. Not only can the reports be used to design treatment plans, but
also can be used by patients and physicians to improve improving communication and
manage chronic disease.
The uniqueness of PROMIS® lies in four key areas:
- Comparability—measures have been standardized so there are common domains
and metrics across conditions, allowing for comparisons across domains and diseases.
- Reliability and Validity—all metrics for each domain have been rigorously
reviewed and tested
- Flexibility—PROMIS can be administered in a variety of ways, in a different
forms
- Inclusiveness—PROMIS encompasses all people, regardless of literacy, language,
physical function or life course.