Welcome to PROMIS
PROMIS ®
Patient-Reported Outcomes Measurement System ®
Health Outcome Measures from the Patient Perspective.
The Patient-Reported Outcomes Measurement Information System (PROMIS) is a network of NIH-funded primary research sites and coordinating centers working collaboratively to develop a series of dynamic tools to reliably and validly measure patient-reported outcomes (PROs). PROMIS provides an opportunity to improve healthcare outcomes by giving decision makers hard data on how healthcare affects what patients are able to do and how they feel. The information is derived from patient responses to a set of rigorously designed questions about different aspects of health-related quality of life (pain, fatigue, anxiety, depression, social functioning, physical functioning, quality of sleep, etc.). Each measure is subjected to a multi-stage development and testing program to ensure that the information meets scientific standards of reliability with the goal to enable clinicians and researchers to have access to efficient, precise, valid, and responsive indicators of a person’s health status. These measures are available for use across a wide variety of chronic diseases and conditions and in the general population. PROMIS efforts are supported through three main centers that include the PROMIS Statistical Center (PSC), PROMIS Network Center (PNC) and the PROMIS Technical Center (PTC).
PROMIS® Statistical Center
The PROMIS Statistical CenterSM (PSC) advises and educates members of the network on a range of qualitative and quantitative research methods, develops and implements processes to ensure data quality; provides leadership in the development of PROMIS approved translations of new and extant domains; assists in the development and implementation of protocols; provides consultation on research design, sample size, sampling plans and power estimates for item bank testing; provides psychometric and statistical support for the network; and works collaboratively with the PROMIS Network to create sustainability.
PROMIS® Network Center
The PROMIS Network Center (PNC) facilitates the development of the PROMIS Strategic Plan and Research Agenda (SPRA) and implements this plan through management, coordination, and the provision of scientific consultation regarding PRO research design and analysis. The PNC is responsible for leveraging PROMIS as a public good through communications, dissemination and business development functions with a focus on supporting the long-term viability and sustainability of the PROMIS Network.
PROMIS® Technical Center
The PROMIS Technical Center (PTC) will provide and manage a secure, customizable data collection, management, and reporting system (Assessment Center); serve as a cost-effective, efficient technological resource for the PROMIS Network; conduct outreach efforts through publications, presentations, and educational tools to increase the research community’s interest in the PROMIS measures and Assessment Center as a platform for data collection; and work collaboratively with the PROMIS Network to create sustainability. Studies can include measures within the Assessment Center library as well as custom instruments created or entered by the researcher. Any PROMIS measure can be downloaded for administration on paper or be included in an online study.
Click here for more information on the Network of PROMIS investigators.